TCH

So... Here we sit at Children's Hospital yet again. Unfortunately, this visit isn't going as great as last visit. It seems the doctors aren't listening to us... Hmmm, maybe they should go work at St. Mary's... Anyway... We sat here ALL day yesterday after the doctors had come in, waiting to see what they were going to do. Not one thing was done yesterday, then they wanted to send us HOME this morning.

He is doing better as far as his oxygen requirement. He is back down to "baseline" which is 1 liter. When we flew here he was on 3 liters in the airplaine, or as Joseph says, hairplane. Unfortunately, he can't lay on his left side because his oxygen saturation drops into the low-mid 80s. We do know from the xray done on Tuesday at Delta Hospital, that his pneumonia is in his left side, so it makes sense that he has a harder time breathing when laying on that side.

His blood pressures have been pretty high for him and we had mentioned it to the doctors yesterday, but they weren't going to call in the cardiologist until I insisted on seeing one today. He seemed surprised that the team hadn't ordered a new chest xray because his heart was larger in the xray from Tuesday. So, the xray was done late this afternoon, so we should have results in the morning. And they are also going to do another echo to make sure his heart is doing ok.

When his pediatrician (we love you Dr. Moore) called to have him admitted Tuesday, she spoke to the pulmonology attending to get things started. Stating that he needed to SEE a pulmonologist, get started on vibration therapy and be evaluated. WE HAVE NOT SEEN A PULMONOLOGIST. The doctors have not called in the pulmonology team. Does that make any sense???????????? He is here for chronic lung problems and they are ready to send him HOME without even doing what he was sent here to have done. I was so upset this morning.... I cried and cried and cried.... If they do NOT listen to us tomorrow, I am asking, no insisting, on a different team of doctors. I am so tired of some doctors treating US like we are over reacting. This is my child!!! He is not like a "normal" kid with a cold, any small lung infection can KILL him... What don't they get???

GRRRRR!!!!!!!!!!!!!!!!